Diane White
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[AutoTest_List] Re: Glaucoma
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09 Jun 98  02:03:06
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MSGID: <199806090203.CAA12196@trapdoor.aracnet.net
> 10000001
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REPLYTO 2:200/111 UUCP
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REPLYADDR autotest_list@wsd.wline.se
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REPLYALSO DOWN-SYN@LISTSERV.NODAK.EDU
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TID: %WGVER%
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CHRS: IBMPC 2
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From: DOWN-SYN@LISTSERV.NODAK.EDU (Diane White)
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To: autotest_list@wsd.wline.se (Multiple recipient
s of mailing list "AutoTest_List")
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Subject: [AutoTest_List] Re: Glaucoma
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Date: Tue, 9 Jun 1998 02:03:06 GMT
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TO: someuser_behind_remotegw@somewhe.re
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This message was distributed by the mailing list A
utoTest_List
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>At 08:43 PM 6/7/98 EDT, Carrie Strachan wrote:
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>>Has anyone else had these eye issues or
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>>know about the occurance of Glaucoma and the tes
ting?  We want to make sure
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>>that we do everything necessary to help Mathew r
etain or enhance the
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>vision he
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>>has now but we have typically gone to "teaching/
research" facilities such as
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>>UCLA  Jewel Stein Center etc. in which the docto
rs are absolute experts in
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>>their field but sometimes we don't know if Mathe
w is being used as a
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>"teaching
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>>case" rather than a typical patient, since there
 have been very few cases of
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>>Down Syndrome children with these eye problems?
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My son, Aidan, now 3 yrs old, had a cataract remov
ed from one eye at 8 1/2
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months of age.  We were told by our ped. opthamolo
gist that the incidence of
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glaucoma increases not from to DS, but rather, due
 to cataracts.  Aidan is,
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therefore, tested for glaucoma yearly and so far, 
so good.  But I have met a
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couple of families whose child had a cataract remo
ved and subsequently
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developed glaucoma.
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Our opthamologist is very open to emails and if yo
u wish to discuss this
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with him, please email me privately and I will pro
vide you with his address.
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He is a well-respected pediatric opthamologist out
 of Sick Kids hospital in
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Toronto, Canada.
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BTW- we, too, went through the patching but it did
 not "work".  Apparently
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in up to 90% of cases of "unilateral" cataracts, v
ision simply does not
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optimize in the poor eye even with contact lenses.
  But Aidan sees
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exceptionally well out of his good eye!
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Regards,
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Diane, mom to Alex (5 nda) and Aidan (3 DS), Bramp
ton, Ontario
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